Showing posts with label Anaphylaxis. Show all posts
Showing posts with label Anaphylaxis. Show all posts

Friday, October 26, 2012

Time to Celebrate!


We had a mini celebration in our house tonight! 


It was originally planned to celebrate Lydia passing her wheat challenge.


Plans had to change. She didn't pass the challenge, and we also found out about two new allergies to garlic and beef. Yes- beef, as in hamburgers and steak and chili and spaghetti sauce.

I was bummed. Really bummed. Party cancelled. But then the pity party cleared, and I realized we had plenty to celebrate. So- instead of wheat, we celebrated our amazingly blessed life. 


We celebrated living in America. I start each day knowing that I can provide my kids with clean sheets, clean water, healthy food, education, a home, and a whole bunch of other frivolousness that we often confuse with "needs". Lydia has nine different food allergies, and yet I still have an abundance of safe, healthy food to buy for her. 


Yep, lots to smile about!


She was wondering why we were staring at the cake instead of eating it. 


Wheat free, dairy free, nut free, soy free, artificial dye free,  and very, very yummy. Even ultra wheat-free critic mama thought it was good. Namaste chocolate cake mix- allergy friendly, not cheap. 
Prayers for our little girl are always welcome. Her allergies are getting worse, not better- and it can be very frustrating. Bill and I are constantly on alert to protect her. We skip eating out altogether unless we pack her meal separately. Movie theaters feel like death traps with all the peanut M &Ms and buttered popcorn. Meal planning is- well, a challenge. Most of her allergies cause severe rashes, but a few of them do try to kill her. Several weeks ago she took a sip of cow's milk from a cup that somehow made it past my paranoid, watchful eyes, and she reacted immediately. Hives popped up over her face and torso, and by the time I ran her up the steps to shower off her skin, her lips and tongue were swelling. We had to use her epi pens and call 911. Food allergies are no joke. I remind myself every time I start to drown in self pity that I am a child of the Almighty, and she's in His care. I trust Him implicitly.  I also think of the orphans in Haiti and Africa who would look at our life and think we live like royalty.  And that's just looking at material things. There's the story of the poor man who sat at the table with his bread and water, and gave thanks saying, "All this, AND Jesus?!"

What if I woke up tomorrow and all I had left was what I gave thanks for today?

Self pity, go away. Cake tastes way better.

Sunday, July 1, 2012

In the Palm of His Hand

So, yesterday was interesting, to say the least. Our church had a pool party in town to celebrate a great week of Vacation Bible School. I was in the baby pool with Lydia and Isaac when I noticed several raised bumps on Lydia's torso. She wasn't crying, and at first I thought maybe a mosquito bit her several times. Then I noticed an obvious sting mark on her wrist, and knew she was reacting to either a bee or wasp. I gave her Benadryl, but it didn't seem to make a difference.Within minutes the hives became bigger on her chest and side, and her lips started to swell. That's when I completely broke down and lost it. I couldn't hold the tears in as the fear overtook me, and I began sobbing. God is so gracious in His care, and I don't think it was an accident that I was surrounded by loving friends who took over for me. One called 911, while others took care of my other three children. Paramedics were there almost immediately, and my heart soon calmed down. Lydia was visibly shaken and scared, and her usually mild tremors were obviously worse. I tried my best to put on a happy face for her, and stopped my own tears. While in the ambulance, peace came over me. I felt the prayers of friends, and I was able to smile and talk to Lydia while helping her stay calm.

To make a long story short, it took two (maybe three, I can't remember clearly) doses of epinephrine, two to three doses of Benadryl, and steroids to bring her back to normal. At no time was her breathing ever compromised. HUGE praise. We went home that night.


I've struggled today to remind myself who's in control. I wish I could keep her indoors 24/7 where I can keep her safe. That's not faith though. That's just wild and uncontrolled fear. I am learning to let go and leave it in His hands. Again.  


Part of me is sad. Lots of tears. Another part is angry at one more way our daughter could possibly die.
As if food, air, and brain function weren't enough methods.


In the weeks leading up to Lydia's recent food allergy testing, I prayed so hard for all of her allergies to be taken away. Part of my prayer was that if it wasn't in His plan to completely heal her, that He would at least remove the shellfish allergy. Random, but that was my prayer. Guess what allergy she no longer has? Her dairy and peanut allergies were even worse, and she has a new allergy to melons, but tears welled up in my eyes when I heard about the shellfish, because I knew He had heard me. It was as if I literally felt Him hold me in that moment, and remind me of His care for both me and Lydia. 


We'll get through this. In the palm of His hand.